Child Heart Foundation

Irfc
Rites Ltd
Concentrix
Sbi Foundation
Sbi Cap

INTRODUCTION
Child Heart Foundation (CHF) works with children between the ages of 0 to 18 years with heart diseases born in underprivileged families. This organization was founded by a leading Pediatric Cardiologist along with six parents who had gone through the CHD journey with their children and now wanted to give back to the society and help families who are unable to bear the treatment costs and also create awareness regarding the disease
MAIN OBJECTIVES OF CHF SINCE ITS FOUNDATION

1. PraDAAN® FREE EARLY DIAGNOSIS

❖ PROBLEM:
• The majority of the children remain undiagnosed due to a lack of facilities and trained manpower.
❖ OBJECTIVE:
• The minimum every child deserves is a medical diagnosis so that further courses can be decided.
❖ INTERVENTION:
CHF runs a free OPD for screening and diagnosis of children with heart diseases referred from Government hospitals or word of mouth.
Monday to Saturday at its premises in Delhi, Once a month at Siliguri (W.B), Jalandhar (Punjab) and Guwahati (Assam)
❖ FUTURE:
• Establish and start Pediatric cardiac OPD at Balakram hospital in North-East Delhi which is under the jurisdiction of Municipal corporation of Delhi.
• To collaborate with other State Governments and replicate Delhi OPD model in establishing pediatric cardiac OPDs in Government hospitals.
• To establish and run peripheral clinics for diagnosis of heart disease in children in remote areas
• Use cutting edge technology for teleconsultation
• Create a network of trained professionals for early diagnosis in newborns

2. CHF HRIDAAN® FREE EARLY TREATMENT

PROBLEM:
Most of the treatment centers in North India are in the private sector. Government Hospitals have a waiting list for up to 5 years, an unlikely option for CHD. Currently, the Charitable Hospitals providing treatment are cherry-picking kids more than 5 kg and uncomplicated anatomies.
 Government Insurance has not provided an alternative to the treatment of these kids. kids are really out of option in North India
❖ OBJECTIVE:
Timely free treatment of children with heart diseases which may require creating infrastructure and network for early diagnosis and treatment
❖ INTERVENTION:
Organize funds for treatment through CSR funds, individual donations and fundraising campaigns
❖ FUTURE:
Plan for the first hospital of CHF including Hospital Project Report, Proposal for Land, Proposal for Hospital Equipment, Large Funding agency plan

3. CHF EDUCATION -Hridya Saksham® MEDICAL EDUCATION

PROBLEM:
There are still very few pediatric cardiologists and pediatric cardiac surgeons in the country for diagnosis and treatment of children with heart diseases
❖ OBJECTIVE:
Train more doctors to diagnose CHD i.e. perform neonatal and pediatric Echoes
❖ INTERVENTION:
• We have developed a sophisticated online training program for Pediatricians and Neonatologists to perform echocardiograms. 255 doctors have got trained via this training program
• We have donated six echocardiography machines to Delhi State Government and Municipal corporation of Delhi hospitals, we are training twelve pediatricians in echocardiography to make these hospitals self-sustainable in pediatric cardiology screening and diagnosis.
❖ FUTURE:
• Replicate the same model in States of India
• We look forward to training doctors and developing a network of doctors for diagnosing CHD early

4. JEEVANSH®- ANTENATAL DIAGNOSIS OF CHD DURING PREGNANCY

PROBLEM:
Current medical science and technology are advanced enough to make the diagnosis of most congenital heart diseases antenatally. Though the technology exists, again, the majority of the patients (poverty limited and government hospital patients) are not getting standard access to antenatal diagnosis of CHD.
• Even in the private sector, the majority of the patients are not diagnosed antenatally.
• This can be changed as the patients are already getting an ultrasound and they are meeting radiologists
❖ OBJECTIVE:
To maximize the use of contemporary technology to diagnose antenatally as many CHD’s as possible
❖ INTERVENTION:
Mass Training of Radiologists, Cardiologists and Pediatric Cardiologists for antenatal diagnosis of CHD
❖ FUTURE:
CHF envisages launching training programs for Fetal Echo for radiologists, Cardiologists, and Pediatric Cardiologist

5. PH Life Care- MEDICINE SUPPORT FOR PULMONARY HYPERTENSION

PROBLEM:
Pulmonary Hypertension (PH) is a universally fatal condition decreasing the lifespan of the patient. It is more often seen in India due to the late diagnosis of congenital heart disease when they cannot be operated anymore.
• Medicines are the only means of extending the life and quality of life, but they need to be given lifelong.
• These medicines are expensive worldwide; they turn out to be unaffordable by our patients. The underprivileged cannot support their child for long on these medicines. This is where CHF comes in
❖ OBJECTIVE:
The dual objective of creating awareness amongst the society about this condition and financially supporting these patients with PH with medical supplies
❖ INTERVENTION:
• CHF has committed to financially help children with PH by providing free medicines with lifelong support.
• CHF has a liaison with International PH associations for increasing the awareness of PH
❖ FUTURE:
• We want to create state-wise support groups to help the maximum number of patients.
• Create more awareness and patient medicines sponsorship, enroll in corporate payroll giving programs

6. CHF SAYHOG PATIENT SUPPORT

PROBLEM:
Patients who come to CHF for screening also include very sick babies on oxygen support from different hospitals, children with other disabilities and pregnant women, Due to their weak financial situation it becomes difficult for them to hire private transport and traveling by public transport is not advisable in their state of health.
• We have also come across parents who delay their child’s follow-ups due to financial constraints to bear travel costs. This is very common with single mothers
❖ OBJECTIVE:
To make the patient travel safe and not let them fail in keeping up their follow up visits which if not attended can be fatal
❖ INTERVENTION:
• Establish a patient transport network for sick babies at low cost
• Reimbursement of travel costs for single mothers and parent with a disability
• Establish a parent support group for heart disease, improve parent communication for motivation towards improving their outlook towards their child's condition
❖ FUTURE:
• Form parent support groups
• Raise funds for the travel expenses for such families

7. ADVOCACY

PROBLEM:
CHD is one of the reasons for high infant mortality in India. Insurance agencies do not cover CHD treatment with the excuse of “pre-existing”. The CGHS and State-sponsored treatment rates are so less than most hospitals having a high-end treatment like CHD surgery (usually in private sector in India) in North India, don’t want to undertake it
❖ OBJECTIVE:
To get into a pivotal position to be able to suggest Government policies issues which would be most beneficial
❖ INTERVENTION:
Apart from taking part in immediate problems which have cropped up due to National Drug Pricing Policy and availability of medicines, CHF has not reached a pivotal position
❖ FUTURE:
Though the timing of this remains to be decided, following a staggered plan to reach such a pivotal position would require opinion leaders and policymakers to be part of a special group

8. SUGYAAN® COMMUNITY AWARENESS

PROBLEM:
• Although1 child is born in every 100 live births with CHD, the delay in screening and diagnosis of this disease is also due to lack of awareness among community and community health workers who work at the grass-root level
• Even in the urban population, there is a lack of awareness regarding the disease load in our country
❖ OBJECTIVE:
• To create awareness in Urban and Rural population about CHD
• To educate and train community and health workers regarding this disease
• Establish an employee engagement program in private companies and PSUs for people to know and share the knowledge regarding CHD
❖ INTERVENTION:
We are involved in creating awareness through community events, social media, workshops and corporate sessions on CHD
❖ FUTURE:
• Improve awareness of heart disease in children within the community by use of technology, also increase outreach through social and print media
• Organize conferences and CMEs with the medical community about the latest research in CHD
• Involve more parents’ groups and health care, workers

9. PARTNERSHIPS

PROBLEM:
It is very important to partner with other organizations that work on child health. To increase our presence and reach out to more children with CHD
❖ OBJECTIVE:
• CHF has been open to partnering with organizations who share our vision and focus
• To establish, maintain or contribute towards the establishment, equipment, and maintenance of the hospital, educational centers, and medical facility center
• To cooperate, collate, and collaborate with other institutions which have a similar objective
❖ INTERVENTION:
• We have partnered with both national and international organizations that work on child health. This partnership has been both for screening and treatment programs
❖ FUTURE:
• Partnership with Organizations, individuals and Venture Capitalists for CHF Charitable Hospital project
• Partnering with more National and International Foundations and Trusts for project- based treatment and screening program

1. As trustees of Smile of Hope in the UK, it's been our pleasure to work with the wonderful Child Heart Foundation. They make a big impact on children with congenital heart diseases and their families. They are arranging for life saving heart surgeries, medicine, heart screenings, health education and medical equipment, all to save innocent lives and give the children the hope for a better future!
2. One of The best NGO which is helping CHD suffering patients with all support from surgery to medication ...selfless efforts to change life of every patient pls help to share their good work and support this novel cause- Dheerendra
3. This is a wonderful, organised, genuine and sincere organisation that’s helps children in multiple ways. I love donating here as any amount can help save a life- Kapur

Guide star Gold certification
Award of appreciation by Delhi Government
Best Non profit in 2022 by Great Non profits
Getting empanelled as Give assured NGO

Municipal corporation of Delhi