National Thalassemia Welfare Society
The objectives of NTWS include creating greater public awareness, educating Thalassemic families, providing medical assistance, organizing blood donation camps, and pursuing the government for better facilities.
- Bronze Certified 2023
- FCRA
- 80G
- 12A
About
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Headquarters
New Delhi, Delhi
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Since
1991
NTWS formed by patients, parents, doctors and well-wishers is dedicated for the cause of Thalassemia since 1991. It was formed with the twin objective Read more of caring the affected people and controlling the disease in future generation. To fulfil our second objective we have planned to create awareness in colleges and screen the students. NTWS has been actively involved in creating awareness and screening the Thalassemia status of masses. We regularly organize Thalassemia Awareness screening Camps in various Corporate and that had a cascading effect on their families friends etc.We regularly provide FREE treatment to some of the poor Thalassemic patients.
Action
NTWS organizes national conferences, symposiums, workshops, and training programs on Thalassemia care in association with various medical institutions.
Demographies Served
Cause Area
Sector
Sub Sector
Impact
NTWS has played a pivotal role in advocating for thalassemia patients, resulting in the Indian government revising blood charges for thalassemia patients.
Vision & Mission
The vision of NTWS is to improve care for all Thalassemia patients and lower the prevalence of the disease through a multi-faceted coordinated approach towards screening and awareness strategies.
Programs
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Medical Check-up Camp at Chandigarh
StateThe Thalassemia Welfare Society Jalandhar orchestrated a complimentary medical check-up and medicine provision event on June 30th at the Civil Hospital, Jalandhar. Dr. J.S. Arora attended as an invited physician to diagnose patients and recommend appropriate treatments. Mr. Surjit Singh Khattar, Managing Director of Help Thalassemics, oversaw the distribution of chelation drugs and other necessary medications to those in need. Various social organizations, including Agaaz Society, Sai Blood Sewa Society, and pharmaceutical company Glaxo, participated in the event, pledging to regularly donate blood to meet the haemoglobin needs of thalassemia patients. Additionally, they committed to raising public awareness to prevent new cases of thalassemia major through financial contributions to support treatment for those unable to afford it.
Milestones & Track Record
NTWS has organized 9 National Thalassemia Conferences, 3 National Symposiums, 7 National Workshops, and a Training Program on Thalassemia Care.
Leadership Team
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Km. Surrendar Saini
President
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Dr. J.S. Arora
General Secretary
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Mr. Neeraj Tripathi
Joint Secretary
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Mr. Ashok Sachdeva
Treasurer
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Dr. V.P. Choudhry
Medical Advisor
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Mr. Jewesh Manuja
Legal Advisor
Demographics & Structure
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No. of Employees
21-50
M&E
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Internal, External Assessors
No
Policies
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Ethics and Transparency Policies
No
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Formal CEO Oversight & Compensation Policy
No
Political & Religious Declarations
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On Affiliation if any
No
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On Deployment Bias if any
No
Registration Details
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PAN Card
AAATN2048P
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Registration ID
S/26823 OF 1994
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VO ID / Darpan ID
DL/2018/0196967
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12A
AAATN2048PE19940
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80G
AAATN2048PF19940
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FCRA
231650969
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CSR Registration Number
Not Available
Location
Other Details
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Type & Sub Type
Non-profit
Society