Organization for Rare Diseases India (Ordi)
ORDI aims to promote rare diseases as a human rights priority, contribute to public policy development, accelerate diagnosis and treatment options, facilitate clinical trials and research, and collaborate with national and international rare disease forums.
- Bronze Certified 2023
Leadership Team
-
Prasanna Shirol
Registration Details
-
PAN Card
AABCO9919N
-
CSR Form 1
Not Available
-
FCRA
Not Available
About
Impact
ORDI has contributed to the drafting of a national policy on rare diseases in India, inclusion of rare diseases in the Rashtriya Aroghya Nidhi Scheme, and initiation of a patient registry by ICMR.
Vision and Mission
ORDI's vision is to ensure a better life for people with rare diseases, while its mission is to be the strong united voice for all rare diseases in India, reducing inequalities and ensuring access to resources for people living with rare diseases.
Political & Religious Declarations
-
Political Affiliation
-
Religious Affiliation
Location
-
Headquarters
No 10, 4th Main Road, #2 (Ground Floor), Jaladarshini Layout, BANGALORE, Karnataka, India, 560054
Directions -
Offices in Cities
Other Details
-
Type
Non-profit
Website
Technology Adoption
-
SOC 2 Compliant
No
-
Financial Management
-
Beneficiary Management