About
Giving hope a new meaning... Established in 1986, Thalassemics India was conceived to check and help deal with Thalassemia. A non-governmental org Read moreanization, Thalassemics India is working zealously across the country, operating in close association with doctors, drug/equipment companies throughout the country and abroad, hospitals, Thalassemia associations & thalassemia centers. An association which was formed by a few Thalassemia parents in 1986, has now achieved the status of a State Awardee (1998) Organization with more than 3000 strong memberships that includes thalassemics, thalassemia parents, associations, doctors & social workers. Thalassemics India is a voting member of Thalassaemia International Federation , an international body based in Cyprus.. Among some of the main achievements of the association since its inception are the establishment of the Thalassemia centers in two hospitals of Delhi. Organization of 7 successful International Conferences & Workshops, holding of free Thalassemia clinics, collection of medicines/equipments for free distribution, organization of free Thalassemia detection camps, collection of funds from India & abroad to help the underprivileged thalassemic patients towards their treatment & collaborating closely with important offices & departments at the State and Central level for achieving the goals. Goals To campaign for blood collection for Thalassemic patients. To counsel & educate thalassemics, their families & doctors on the management of Thalassemia. To create better transfusion & treatment facilities. To collect funds, equipments, medicines for underprivileged thalassemic patients. To create awareness among public & facilitate screening and prevention programmes for control of Thalassemia. To promote collaboration with State & Central Governments, W.H.O., Thalassemia Centres in India, Thalassemia International Federation, Hospitals & other NGO's.
Action
The organization provides counseling, medicines and equipment, awareness and screening programs, disability card assistance, education, and collaborates with various stakeholders to support Thalassemia patients and their families.
Demographies Served
Cause Area
Sector
Impact
Thalassemics India has grown from a small association of parents to a State Awardee Organization with over 3000 members, including patients, parents, doctors, and social workers.
Vision & Mission
To support the provision of quality health care to all patients with thalassemia and to advocate for a thalassemia-free India.
Milestones & Track Record
Thalassemics India has established Thalassemia centers in two Delhi hospitals, organized 7 successful International Conferences & Workshops, and collaborated closely with state and central level offices for achieving its goals.
Leadership Team
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Anubha Taneja
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Hemant
M&E
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Internal, External Assessors
No
Policies
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Ethics and Transparency Policies
No
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Formal CEO Oversight & Compensation Policy
No
Political & Religious Declarations
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On Affiliation if any
No
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On Deployment Bias if any
No
Registration Details
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PAN Card
AAATT0511H
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FCRA
231650934
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CSR Registration Number
Not Available
Location
Other Details
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Type & Sub Type
Non-profit
Society