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Spina Bifida

Provides medical care, raise awareness, and advocate for the prevention and support of individuals with Spina Bifida and neural tube defects in India

  • 80G
  • 12A
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About

  • Headquarters

    Mumbai, Maharashtra

  • Since

    2009

The Spina Bifida Foundation (SBF), a non-profit organisation, was founded by healthcare professionals and parents of children affected by Spina Bifida Read more. For more than ten years, they have committed themselves to supporting Spina Bifida patients across India. Originally, the effort began as a modest support group at Wadia Children’s Hospital in Mumbai. However, as the need for help increased, it transitioned into a formal entity and was officially registered as a charitable trust in 2009. SBF envisions a future where all individuals with Spina Bifida in India lead meaningful and productive lives, while also working to eliminate preventable neural tube defects (NTDs). Its mission includes enhancing the quality of life for patients and their families by providing medical care and encouraging socio-economic rehabilitation. Additionally, it seeks to raise awareness of NTD prevention, advocate for proper food fortification, and push for the creation of a Birth Defects Registry in India.

Demographies Served

Cause Area

Sector

Sub Sector

Programs

  • Lectures and Camps

    District

    State

    Lectures on Spina Bifida prevention have been conducted at the Rotary Club in New Bombay, Shillong, Meghalaya, and Bangalore, focusing on prevention and management. Free checkup and counselling camps were held in Dadar, Mumbai, under the MMD Center, and a prevention campaign took place in Dombivli, organized by ACE Hospital. An exhibition was organized by students from Sophia College, and research papers on Spina Bifida were presented at an international conference in Barcelona, Spain.

  • Other Activities

    District

    State

    A Parent Support Group for Spina Bifida was established in India, bringing together over 50 parents and children to share experiences and support each other. This initiative aims to provide a network of assistance for families affected by Spina Bifida. Additionally, an awareness programme on Spina Bifida and birth defects was held at Wadia Hospital. This event, supported by the British Council and Wadia Children’s Hospital, focused on educating the public about the prevention and management of these conditions.

Leadership Team

  • Dr. Santosh Karmarkar

    Trustee

  • Ms Jahanvi Modi

    Co- chairperson

  • Ms. Sneha Sawant

    Chief Co-ordinator

  • Dr. Snehal Deshpande

    Member

  • Mr T V Sudhakar

    Member

M&E

  • Internal, External Assessors

    No

Policies

  • Ethics and Transparency Policies

    No

  • Formal CEO Oversight & Compensation Policy

    No

Political & Religious Declarations

  • On Affiliation if any

    No

  • On Deployment Bias if any

    No

Registration Details

  • PAN Card

    AAITS3161J

  • Registration ID

    E-25566

  • VO ID / Darpan ID

    MH/2018/0213983

  • 12A

    AAITS3161JE20211

  • 80G

    AAITS3161JF20231

  • FCRA

    Not Available

  • CSR Registration Number

    Not Available

Location

  • Headquarters

    G-1, Enid’s CHS, Chapel Road, Near Lilavati Hospital and opposite to Shri Padmavati Xerox and Lovely Stores, Bandra West, Mumbai, 400050

    Directions

Other Details

  • Type & Sub Type

    Non-profit
    Trust

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