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Spina Bifida

Provides medical care, raise awareness, and advocate for the prevention and support of individuals with Spina Bifida and neural tube defects in India

  • 80G
  • 12A
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  • Overview

  • PROGRAMS

  • People

  • ABOUT US

Cause Area

Primary Sectors

Secondary Sectors

Geographies Served

Programs

  • Lectures and Camps

    District

    State

    District

    Mumbai

    States

    Maharashtra

    Lectures on Spina Bifida prevention have been conducted at the Rotary Club in New Bombay, Shillong, Meghalaya, and Bangalore, focusing on prevention and management. Free checkup and counselling camps were held in Dadar, Mumbai, under the MMD Center, and a prevention campaign took place in Dombivli, organized by ACE Hospital. An exhibition was organized by students from Sophia College, and research papers on Spina Bifida were presented at an international conference in Barcelona, Spain.

  • Other Activities

    District

    State

    District

    Mumbai

    States

    Maharashtra

    A Parent Support Group for Spina Bifida was established in India, bringing together over 50 parents and children to share experiences and support each other. This initiative aims to provide a network of assistance for families affected by Spina Bifida. Additionally, an awareness programme on Spina Bifida and birth defects was held at Wadia Hospital. This event, supported by the British Council and Wadia Children’s Hospital, focused on educating the public about the prevention and management of these conditions.

Leadership Team

  • Dr. Santosh Karmarkar

    Trustee

  • Ms Jahanvi Modi

    Co- chairperson

  • Ms. Sneha Sawant

    Chief Co-ordinator

  • Dr. Snehal Deshpande

    Member

  • Mr T V Sudhakar

    Member

Registration Details

  • PAN Card

    AAITS3161J

  • Registration Number

    E-25566

  • CSR Form 1

    Not Available

  • 80G

    AAITS3161JF20231

  • 12A

    AAITS3161JE20211

  • FCRA

    Not Available

About

  • Headquarters

    Mumbai, Maharashtra

  • Since

    2009

Impact

SBF aims to enhance the lives of individuals with spina bifida and their families by facilitating proper medical treatment and socio-economic rehabilitation.

Vision and Mission

SBF's vision is to enable all spina bifida individuals in India to lead productive and happy lives, and to prevent all preventable neural tube defect cases in India.

Political & Religious Declarations

  • Political Affiliation

  • Religious Affiliation

Location

  • Headquarters

    G-1, Enid’s CHS, Chapel Road, Near Lilavati Hospital and opposite to Shri Padmavati Xerox and Lovely Stores, Bandra West, Mumbai, Maharashtra

    Directions
  • Offices in Cities

Other Details

  • Type

    Non-profit

  • Sub Type

    Trust

Website

YouTube 
Facebook 
Instagram 

Technology Adoption

  • SOC 2 Compliant

    No

  • Financial Management

  • Beneficiary Management