About
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Headquarters
Morena, Madhya Pradesh
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Since
2007
The SGS Foundation is a non-profit organization established to provide support to families caring for children with Schinzel-Giedion Syndrome (SGS), r Read moreaise awareness of SGS, and facilitate medical research to improve the quality and length of life for children with SGS.
Action
The foundation conducts activities to support families affected by SGS, promotes awareness of the rare genetic disorder, and supports medical research aimed at finding better treatments for SGS.
Impact
The SGS Foundation represents the international SGS community and works to improve the lives of those affected by SGS through family support, research facilitation, and patient advocacy.
Vision & Mission
The foundation's vision is for all children with SGS to receive rapid genetic diagnosis and access effective medical and gene therapies for longer, healthier, and happier lives. Its mission is to support SGS families, raise awareness, and facilitate research for better treatments.
Milestones & Track Record
The SGS Foundation was established in 2019 as a registered UK charity (Registered Charity Number 1186327) by an international group of parents of children with Schinzel-Giedion Syndrome.
M&E
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Internal, External Assessors
No
Policies
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Ethics and Transparency Policies
No
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Formal CEO Oversight & Compensation Policy
No
Political & Religious Declarations
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On Affiliation if any
No
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On Deployment Bias if any
No
Registration Details
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Registration ID
02/42/01/11233/07
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VO ID / Darpan ID
MP/2010/0038195
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FCRA
Not Available
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CSR Registration Number
Not Available
Location
Other Details
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Type & Sub Type
Non-profit
Society