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Hemophilia Federation (India)

Promotes Hemophilia care and support for Persons with Hemophilia (PwH) in India by providing quality care, education, and affordable treatment to improve their quality of life

  • Gold Certified 2023
  • FCRA
  • 80G
  • 12A
  • CSR-1
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About

  • Headquarters

    New Delhi, Delhi

  • Since

    1983

Since 1983, Hemophilia Federation India (HFI) is the only national umbrella organization in India working for the welfare of the PwH through a network Read more of 87 chapters spread over four regions. We aim to reach out to PwH and provide total quality care, education, make treatment available at affordable cost, psycho-social support, and economic rehabilitation and thus help them in improving the quality of life without disability and free of pain. Our Vision- Hemophilia without disability, Children free of pain Our Mission - To locate un-diagnosed “Persons with Hemophilia (PwH)” -To educate and provide proper information on Hemophilia care to Persons with Hemophilia, their families and the medical fraternity -To make treatment available at affordable cost

Demographies Served

Cause Area

Sector

Sub Sector

Vision & Mission

Vision:
“Hemophilia without disability, Children free of pain”
“One Country, One Treatment”

Mission:
● Providing total care for Hemophilia.
● Educating, training and rehabilitating for Hemophiliacs.
● Involving government and other organizations.
● Research and prevention of Hemophilia.

Donor History

World Federation Of Hemophilia

Programs

  • Nnhf- India 12

    Train-the-trainer workshop and one regional training. Rollout of the training concept to the other three regions, adapted based on the outcomes of phase 1.Follow-up workshop of the trainers’ team and 1 regional follow-up workshop .Rollout of the follow-up workshop concept to the other three regions, adapted based on the outcomes of phase 3

  • Wfh- Humanitarian Aid

    Treatment support through factor donation

  • Save One Life -Usa

    Provide sponsorship,scholarship and Micro Enterprises Grant

  • Bhel Project- Heal a Soul -Iv

    State

    Anti Hemophilic Factor(AHF) support for home therapy

  • Bhel- Heal a Soul - Iii

    State

    Anti Hemophilic Factor(AHF) support for home therapy

Impact Metrics

  • Made Factor Available for Routine Bleed

    Year-wise Metrics
    • 2019-20 6800
    • 2020-21 6550
    • 2021-22 7000

  • Surgeries

    Year-wise Metrics
    • 2019-20 225
    • 2020-21 210
    • 2021-22 240

  • Prophylaxis

    Year-wise Metrics
    • 2019-20 418
    • 2020-21 376
    • 2021-22 396

  • Sponsorship - General Donation

    Year-wise Metrics
    • 2019-20 1545
    • 2020-21 1474
    • 2021-22 1414

  • Scholarship

    Year-wise Metrics
    • 2019-20 19
    • 2020-21 13
    • 2021-22 13

  • Micro Enterprises Grant

    Year-wise Metrics
    • 2019-20 28
    • 2020-21 20
    • 2021-22 22

  • Ahf Provided to Beneficiaries for Home Therapy, Severe and Routine Bleeds

    Year-wise Metrics
    • 2020-21 106
    • 2021-22 40

  • Made Factor Available for Routine Bleed

    Year-wise Metrics
    • 2019-20 6800
    • 2020-21 6550
    • 2021-22 7000

  • Ahf Provided to Beneficiaries for Home Therapy, Severe and Routine Bleeds

    Year-wise Metrics
    • 2020-21 106
    • 2021-22 40

Theory of Change

Increase treatment/Factor availability , Awareness, Identification of undiagnosed hemophiliacs

Milestones & Track Record

● Identified and supported approx. 28640 P & CWH across the country.
● A large network of 92 chapters in India.
● Educated more than 15,000 people of the medical fraternity on hemophilia care and
management through Continuous Medical Education (CME).
● Two International Hemophilia Training Centers established for the hemophilia care
training requirements for the Asian region.
● Special Needs Cell for HIV positive PWH that provides subsidized treatment.
● Supported 50 PWH on economic rehabilitation esp. with formation of women Self Help
Group (SHG).
● National Member Organization (NMO) –India with the World Federation of Hemophilia
(WFH).
● Celebrated 25 successful years in the service of Persons & Children with Hemophilia on
Nov 24th 2008
● Finalists for NGO Awards 2013.
● Finalist for HCL Grant 2018.
● Letter of appreciation from the Ministry of Health & Family Welfare (MOHFW) GOI.

Donor Testimonial

We have been working closely with Hemophilia Federation (India) (HFI) over three decades and we are continuously impressed by their tireless dedication to helping the hemophilia community in India. HFI has been a great partner in WFH's flagship programs such as Path to
Access to Care and Treatment (PACT) & Humanitarian Aid program helping over 10,000 people with Hemophilia and supporting more than 1400 life and limb saving surgeries through effective
and efficient distribution and management of clotting factor concentrates. This has impacted countless individuals and families, and we are grateful for their partnership in advancing the mission of the WFH. HFI has been consistently demonstrating a deep understanding of the challenges faced by the hemophilia community in India and working tirelessly to address them through advocacy with the governments and important stakeholders. Their commitment to transparency, accountability, and collaboration has made them an invaluable partner on our journey towards 'Treatment for All'.
HARSHAL KALE

Leadership Team

  • Dr. Cecil Ross

    Vice President Medical

  • Premroop Alva

    President

  • Ramu Gadkar

    Vice President Development

  • Jagdish Sharma

    Vice President - Finance

  • Pawan Madhur

    Chief Executive Officer

Demographics & Structure

  • No. of Employees

    6-20

  • Strength of Governing Body

    20

  • Diversity Metrics

    13% women

M&E

  • Internal, External Assessors

    No

Policies

  • Ethics and Transparency Policies

    No

  • Formal CEO Oversight & Compensation Policy

    No

Political & Religious Declarations

  • On Affiliation if any

    No

  • On Deployment Bias if any

    No

Organisation Structure

Organisation Structure

Yes

Awards & Recognitions

Finalists for NGO Awards 2013
Finalists for HCL Grant 2018 - Health Category
Letter of Appreciation for the MOHFW (GOI)
National Member Organization with World Federation of Hemophilia (WFH)

Registration Details

  • PAN Card

    AAATH1509B

  • Registration ID

    S-15342/1985

  • VO ID / Darpan ID

    DL/2017/0176092

  • 12A

    AAATH1509BE20214

  • 80G

    AAATH1509BF20213

  • FCRA

    231650667

  • CSR Registration Number

    CSR00006176

Location

  • Headquarters

    A-128 Mohammadpur, Behind Bhikaji Cama Place Behind Bhikaji Cama Place, New Delhi, 110066

    Directions

Other Details

  • Type & Sub Type

    Non-profit
    Society

Website

Financial Details

 Income / Expenses

  • 2019-20

    Income
    Rs.98,185,329
    Expenses
    Rs.96,572,393
    Admin Expenses
    Rs.23,177,374
    Program Expenses
    Rs.73,395,019
    Tip: Click on any value above to exclude it.

  • 2020-21

    Income
    Rs.68,579,806
    Expenses
    Rs.54,700,153
    Admin Expenses
    Rs.15,316,043
    Program Expenses
    Rs.39,384,110
    Tip: Click on any value above to exclude it.

  • 2021-22

    Income
    Rs.65,887,730
    Expenses
    Rs.61,632,429
    Admin Expenses
    Rs.20,338,701
    Program Expenses
    Rs.41,293,728
    Tip: Click on any value above to exclude it.

  • 2022-23

    Income
    Rs.81,576,373
    Expenses
    Rs.79,442,824
    Admin Expenses
    Rs.38,926,984
    Program Expenses
    Rs.40,515,840
    Tip: Click on any value above to exclude it.
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